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Monthly Archives: March 2015

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April is autism awareness month!

Alhamdulillah, very excited to be on the GreedforIlm podcast for World Autism Day talking social stigma in the Muslim community and spiritual coping for special needs parents. 🙂

Screenshot 2015-03-30 00.35.37

Insert Angst Here

Certain blog posts are composed entirely of angst. This will be one of them.

And now, in alphabetical order, I present to you the causes of my angst.

Arthritis: My everything hurts. But it stopped hurting when I started meds for the arthritis. But then I was having nightmares every night, and going to sleep at night became a source of angst. So then my Dr. changed my meds, and the nightmares stopped but all the pain came back. I followed up with doc, and she said that if my pain isn’t responding to this medicine then it might not even be from arthritis, so now I’m confused (and also, in pain) because if it’s not arthritis then why did everything stop hurting with the last medicine?

Autism: Khalid’s doing amazingly on an academic level, but his social skills are stuck in KG mode. I take him to play and he ends up being by himself regardless of the number of children there, because other nine year olds don’t speak his play language. He gets along best with five year olds. They still play trains and dinosaurs and simple cause & effect games.

Blogging: I feel guilty about neglecting my blog, like properly remorseful. And yet, between the pain involved with writing and the pain of my subject matter, I’m really having a hard time. I’m stressed, so I’m going to end up writing about stress. I don’t want to though, I’m not here to bring myself or other people down. I know that people will find whatever they’re looking for, and I refuse to look for pain. Pain seems to be looking for me though.

EDS: My neck got stuck again a few days ago, and I couldn’t find my phone, husband was out of the country, and the kids needed a blue million things but all they got was peanut butter & jelly. Eventually I found my phone and ordered in fried chicken, Alhamdulillah. Took some painkillers and slathered myself in voltaren gel. Am still stiff but at least I can move my neck. This whole EDS thing is getting more irritating as time passes, even my wrists creak & grind now.

Fever: I had one of those for the last two days. I went to bed at 7:30 pm yesterday, and was up and down all night with bad dreams, drenched in sweat, and disoriented. I’m hoping tonight will be better. HF got home today after being away for a week, and managing the kids and work without him is never a walk in the park.

Finances: So we’re thinking of moving to the US so we can find better help for Khalid, but money makes the world go round. Admittedly, we don’t have all that much. Alhamdulillah, Allah has blessed us with more than most people- that we have a room over our heads and food every day is more than even half the world’s population can claim, but relocating the whole family, setting up a new home, and me being unable to work a full-time job due to health is worrying me.

Hamster: Marty died last week or so. She passed away peacefully in her sleep. The girls buried her in a flower pot in the backyard and put a little marker on her grave and while they seem to be over it, every time I look out the kitchen window and see her resting place it makes me sad again. I don’t actually know if Hamsters go to Jannah, heh.

Husband: Oops! I’ve been caught out of bed. Time to be a grownup and stop blogging in the dark.

Look, an update!

Hey, we’re blogging again!  See? I hope you like minecraft, because we sure do.