Woulda Coulda Shoulda

I shoulda seen it coming.  I felt Musfira make a tiny little gagging sound as I held her over my shoulder.  After all, I have three children.  I know how ominous one tiny *herp?* from a child’s mouth can be.  Sometimes that’s the only warning you get before herp turns into full-out hurl. I could’ve…

Gofundme, please?

Well, we now officially have a GoFundMe page.  JazakAllahuKheiran to Mariam for setting it up. 🙂 I feel nervous and excited.  But nervous.  But hey, what have I got to lose? Apart from the not for profit autism intervention service that I’ve invested the last three years of my life on but Hey! Let the spamming…

A lovely update :)

AssalamuAlaikum all of you really awesome peoples.  🙂  Through the grace and mercy of Allah, which facilitates the kindness and generosity of people like you, things are looking better for AutismUAE.  Not only have the comments in my last post reached almost a third of what we need (JazakAllahuKheiran, really) but Muslim Matters has also…

2.0 is not a fan of ambiguity

To make a long story short, the not-for profit autism intervention service that I founded three years ago is in danger of going under.  Partly due to a long string of non-paying parents, and partly due to a chronically ill, depressed, and mentally spazztastic director.  That would be me.  I’m the chronically ill, currently a…

Hooray!

Everyone has a purpose in this life.  Sometimes I think mine may be to give medical staff something funny to talk about over break, MashaAllah. My doctors are trying to figure out if my POTS, progressive weakness & neuropathy are caused by an underlying auto-immune disorder, which isn’t entirely unheard of.  One of the way…

This is NOT complaining

This is an elaborate status update that you didn’t ask for.  But it’s not complaining. I’ve been cat-sitting for my sister’s cats for a week or so now, and they follow me from room to room mewling expectantly.   Whenever I sit down to work they loll all over the keyboard, chew the wires, yowl…

The only kind of counterstrike I play

One of the ways that Shaitaan tries to bring me down is to get me to use the internet for wandering into distraction versus addressing any cause of my stress, or Shaitaan-Forbid- actually making dua or something. So I use his own trick against him and use the internet to bring me closer to Allah.…

Dua or a Dollar for the Philippines

I have a special relationship with the Philippines- even though I doubt the islands know.  When my son was diagnosed with autism and my husband and I were struggling to meet his monthly therapy needs and begging Allah for help, He gave us a special needs teacher and ABA therapist from there whose passion, energy,…

Dear Not a Loser…

“Asalaamualaikum please don’t think dat i am belittling your problems but i want to kill myself but i cant as it is prohibited i feel i am accumulating sins day by day isn’t it better for me to die i am not satisfied with my life i don’t want to do engineering but for my…

Sibling Rivalry

Once upon a time, my sister Owl used to blog, so if I needed to share an update about her, I could just link her post.  However, it’s been a while since she has, and I think her blog may no longer be public access, so I just have to update here. Owlie-bird has a…

There

There is a nagging, gnawing on the inside of my soul, it’s the feeling of my body giving up before its time…

My back hurts. Buy it a cupcake?

Aaaaaand now that I’m out I can’t go back in again, and overwhelmingly I am getting asked one question from the people who know me in real life: How come I didn’t know you were sick?! Well, it’s not really a talking point for most of my day. Welcome to my office, I have chronic…

Alhamdulillah! I’ve been upgraded!

There aren’t enough characters in the title limit to fully express how many Alhamdulillahs I would like to put in the title, so I have to settle for one. So, Alhamdulillah, my neurologist in Chicago (who I visit this last week) has helped me clarify what exactly’s going on with my body.  To make a…

By the steeds, choo choo!

Autism has its pros and cons- and boy does it ever have its cons- but SubhanAllah, it really has its pros. Khalid doesn’t just like dinosaurs, he likes reading about them, and he doesn’t just read stories, he reads encyclopedias.  And he’s not just reading encyclopedias, he is memorizing them- word for word, page by…

Home Thoughts from Heathrow

It was a strange angle for my head to be tilted at, cocked severely to the right and resting uneasily against the cabin window. I woke up because I smelled eggs. The passenger to my left was still asleep. She was a designer for a major retailer. She said you could put Hello Kitty on a pink garbage bag and it would sell. She’s right.

More Sweetness- Tweet Tweet!

I just finished six hours of class- possibly the best class I’ve ever taken- called The Unfolding Dream with Shaykh Sajid Umar.  It would not be correct to say it is the Tafseer of Surah Yusuf- because Tafseer only scratches the surface. Six hours… and we’ve covered thirteen ayas. I came to class with five hours…

Right Brain, Left Brain, Tic-Tac-Toe

RB: The kids have really messed up the living room walls. I think there’s even a game of tic-tac-toe behind that sofa…

LB: Eh- You could be dying, why should you care about what the house looks like?

RB: Just because I could be dying doesn’t mean I need to die in squalor.

LB: You’ll be dead, how will you know if it’s squalor?…

Countdown to Catastrophe!

If you hate Barney (you know you do) and you wish there were intelligent, adorable, totally halal, and well-written cartoons for children that also happened to be ISLAMIC!!! (talk about unrealistic expectations, hunh?) then I have bad news for you: There are only five days left for the Misri Bunch kickstarter campaign to find Season…

Irony

So HF was in a fender-bender today.  He was stopped at a signal and someone ran into the back of his car hard enough to crash his into the next stopped car.  Alhamdulillah, he’s alright and as he cheerfully mentioned: the car needed new bumpers anyway.  It’s still a little unsettling to me though, that…

Hey, good news for a change!

Alhamdulillah!!! I’m going to be publishing my first book!

Given the last ten or so years of my blogging history, you’ll be surprised to hear it isn’t actually full of mortal wounds, kids stories, and personal reflections. It’s actually a children’s book, and I’m very excited.

Sweetness.

At nine in the morning, Khalid came and asked if he could borrow my phone. I told him yes, but he HAD to wake me up at 9:40, because I had a doctor’s appointment to get to. I have bronchitis so I’ve been stealing some extra snoozes in the morning. Khalid agreed, took my phone,…

Hello my name is: Not Dying-Yet.

So the funny thing about having unspecified myopathy is that no one says I’m dying, but no one says I’m not either.  Yes, the muscles in my body are atrophying, and yes you need muscles to do things like pump blood and breathe, but because I haven’t developed any serious heart or lung complications yet,…

Be careful what you wish for, sweetheart.

Musfira, staring into bedroom mirror: Momma, whez my beeowd? Me: Your beard? Musfira, you don’t have a beard. Musfira: Why naht? Me: You’re a little girl. Beards are for babas. Musfira: *pouts* I wan sum beeowd! Me: You can’t have a beard! Musfira, dramatically wailing and clutching face: I WAN SUM BEEEEEEEOOOOOOOWD! You can’t make…

Some milestones are funnier than others

And Khalid hit a new one this week, all by himself.  He wrote, directed, and narrated his first independent documentary film.  And he did it on my phone without telling me, and it almost got deleted because I had no idea what it was.  But here it is.  Khalid’s first documentary ever.  Transcript available in…

You have been warned

If you’re here from my article on Muslim Matters and are looking for further maternal wisdom, then please take note: this update has no purpose other than the documentation of the intolerable cuteness that is my 2.1 year old Musfira.  You have been duly warned. As expected of a third child, Musfira is louder, faster,…

Planning a Fail-Proof Iftar with ABA!

In case I haven’t mentioned this before, I love ABA.  Seriously.  I’m not referring to  table-top flashcard activities, I’m referring to the analysis of behaviour hence- Applied Behavior Analysis. As part of behaviour analysis, behaviours are broken down into chains of A,B,C- Antecedent, Behaviour, and Consequence.  Basically, the antecedent is what precedes a behaviour, the behaviour is the err… behavior, and the…

Sometimes.

Sometimes, when my arms feel especially weak and the bread for dinner seems especially chewy, I feel kind of deflated and end up googling for things like “myopathy experts,” and “where to find help for myopathy.” Due to things like location and financial constraints, nothing seems useful.  And then I get sad.  Just once, I…

A happy dance

Coming home, coming home! HF is coming home! After roughly two weeks abroad for work, HF is coming home in three hours.  I told Khalid that Baba would be home by the next morning.  Khalid’s response was: “Oh, I think I will jump all day at school!” “Does that mean you’re excited?” “Yeah!” Me too…

Crime, Punishment, and Batman.

Why yes, I am blogging about Batman.   Excuse me, I think my geek is showing. In this day and age superheroes have their own sort of mythology, and they are the modern equivalent of demi-gods in our shared popcultural experience.  They have devoted followers, fanatics even, and people can have stronger beliefs about which school…

Today the barber, tomorrow- the moon!

This video offers advice for hairstylists to help give children with autism less traumatising haircuts.  I really wish it had been produced four years ago.  Getting Khalid’s hair cut used to be as terrible for the stylist as it was for him, and he’d cry so hard he would vomit and/or soil himself.  Khalid would end up…

Artfully vague but critically important

DPO, my former boss, asked me an interesting question yesterday.  He asked me whether I could consider the creation of another version of myself, one that had my existing strengths, none of my existing weaknesses, and all of the skills she needed to get what she needed done.  He called her Abez 2.0. We assigned…

Sometimes I forget she’s five

Iman: Momma, all birds lay eggs- Me: That’s right, very good… Iman: -except for tigers. Me: Iman, tigers are not birds. Iman: What about bats? Me: No, they’re not birds even though they fly.  They don’t have feathers.  They’re kind of like flying mice. Iman: But they’re not alive, right? Me: Of course bats are alive!…

Musfira’s Great Nap Escape

Musfira will be turning two next week, and the older she gets, the more creative and amazing her attempts to escape from nap-time become. I put her down for a nap at 12:00.  At 12:15, she desperately cried out “Momma, Ow!” I rushed to the room wondering how she could have gotten hurt while in…