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(Too cool for school)

Autism, Momma-ism 5 Comments »

The hunt continues to find Khalid a suitable English-speaking school that is autism-friendly, uses sound behavior reinforcement principles (rather than education through intimidation) and doesn’t cost an arm, a leg, two kidneys and your left earlobe.  I’ve been to three schools just today, dragging Khalid and Joy along for the ride and leaving a trail of bemused registrars in our wake.

“Does he know his colors?’

“Yes.”

“Can he recognize letters?”

“Khalid, what does this bag say?”

“Best Salted Cashews.”

People are generally confused by Khalid.  When we go into visually exciting new places, like schools, his attention is all over the place taking in the new surroundings, and the outsider’s first assumption is that the lights are on but no one’s home.  He has to read every written word on every wall and visually digest every shape lovingly cut and unsteadily decorated in glitter glue.   The various registrars and social workers who try to probe him ask him questions without first getting his attention, and as the seconds tick by in silence, I can see exasperation come over their faces as they assume I am exaggerating Khalid’s cognitive abilities just to get him into school.

“So Khalid, how are you?”

-tick-

-tock-

-tick-

“Big, big giant school.”

(The social worker looks amused)

“Stairs going up.”

(The school has an impressive staircase leading from the reception to the second floor.)

“Do you have any friends?”

(I want to kick her for asking this)

-tick-

-tock-

-tick-

“Boys.”

(Now she looks confused.)

I earnestly explain that he’s telling her about his friends- that they’re boys.

“And girls.” Khalid adds after another second.  ”And kids.”

“Khalid,” I say nervously, “Can you tell me about your friend Omar?”

“He’s not here.”

“Omar transferred from the school,” I explain again.  ”None of the children in his current school speak English, so he hasn’t made any new friends yet.”

“Khalid,” the social worker continues, “What shape is this?”

Khalid looks down at the iPad that she’s pointing to. He’s been using it to play Cut the Rope, and also, to search for walk-throughs on YouTube when he’s stuck on a certain level.

-tick-

-tock-

-tick-

“Rectangle.”

“Very good!” the social worker says, genuinely surprised. “And this?”

Khalid looks to the coffee table.

“It’s a circle.  Like the sun.” He uses his finger to squiggle, in the air, what he means to be the rays of the sun. The he goes back to his own world, reading the walls.  Do not enter.  Push.  Pull.  In case of fire.  I remember- once we were driving back home from Ajman, and the sun was setting in an electric orange ball to the west of Emirates Road.

“Look Khalid, Iman- the sun is going down! SubhanAllah, it’s so big and round!”

Iman says: “Ooooh!”  Khalid says: “Sun is a planet?”

-blinkblink-

Owlie and I took the kids to the children’s museum once, where watched a half an hour presentation on the solar system- once.   This was before Musfira was born, and she’s almost four months old now.

“Actually, the sun is a star.”

“Not a planet?”

“No, because planets don’t give off light. The sun is a star, I think.”

Khalid disagrees.

“Not a star, planet.”

In Khalid’s big-city world view, stars are shapes with five points that exist primarily to be colored yellow.  Dubai has way too much light pollution to see anything other than the moon and the air traffic.  I can see his point of view.  So I offer a compromise.

“Ok Khalid, maybe it’s a little bit like both.”

The social worker says she’ll get back to us.

We pack up and drive off to the next school.  The principal, who I met last Thursday to appeal for Khalid’s admission, is out sick.

“I’ll leave a message please,” I say to the front-desk secretary.  As I’m scribbling what I hope is a friendly, optimistic, and not too desperate-sounding request for a call back, Khalid is taking in the student-made exhibits on traffic safety week.  I borrow the receptionist’s stapler and use it to make sure my business card makes it along with the message.  Khalid’s last school admitted him on the strength of my position in exchange for training their KG department, and I’m willing to make whatever sort of bargains I have to and pull whatever strings I can reach to get him into a school.  I’ve spent hours camped outside of school offices waiting to hound, guilt, impress, and emotionally blackmail whoever I need to in order to get Khalid a fair chance.  I think I’m getting used to it now.  I think I need to order more business cards.

“Khalid, it’s time to go now.”

“I need to fix.”

He’s trying to put the hat back onto the lego victim of a car crash who’s laying on lego street waiting for the lego ambulance to come to his aid.

“It’s alright, I think that’s how they meant the exhibit to look.”

“I like legos.”

Iman goes to school every day and Khalid gets left behind, asking me when we’re going to pick her back up.  Iman’s teacher is delighted that she’s the youngest child in the class and the only one who can already write her own name.  Khalid’s teacher, on the other hand, was openly angry about having to deal with “these kinds of children” when she already has twenty six other children in class she’s supposed to be teaching instead.  The atmosphere on the first day of teacher training for that school was bordering on mutinous, and what was intended to be a workshop on using reinforcement within the framework of ABA quickly deteriorated into an angry argument between the pro-inclusion principal and Khalid’s anti-inclusion (and openly anti-Khalid) teacher.  She walked out of the workshop, returned to argue with the principal in Arabic, and then walked out again.

To her credit, she did come on the second day and exhibited much less eye-rolling.  Today was the third day, and she looked almost civil.  Of course, she has no reason to be mad anymore, because Khalid is no longer attending her class.

He’s been home from school for three days now.  He owns uniforms from two different schools, and when Iman came home in her PE uniform yesterday, Khalid walked silently to his bedroom and came back dressed in his.   He’s honest to a fault, and so sensitive to the world around him but so limited in expressing how much it affects him.  I look at him, with his enormous beautiful eyes and his profoundly hidden profound intelligence, and my heart aches.

“You like legos my Jaan?”

“Yeah. I like it.”

He smiles at me.

“Then I think it’s time to buy you some.”


October 6th, 2011  



In a nutshell

Autism, Medical Misadventures 4 Comments »

Khalid fell down and busted his head on the corner of the wall.  Stood him up and said Khalid, did you hit your head?  With blood pouring down his face he answers: No.   No tears, no crying.  Rocking in pain, but outright denial because he refuses to acknowledge things he finds uncomfortable.  He’s an amazing little man, SubhanAllah.

Mashed a kitchen towel against the side of his head and took him to the ER where everybody already knew his name. A two-inch long gash, Alhamdulillah, not too deep.  He played iPhone while getting stitches.  I asked him how his head felt, he said “sick.”

The kids started school last week, and Khalid is finishing this week- his current school does not have a high enough percentage of English speaking children in it for him to be able to use the words we’ve spent the last two and a half years teaching him.  Bad behaviors are being reinforced, and I am running amok this week trying to find another school that will take him.

Incidentally, I am also training the KG department of the current school, because that was an agreement made with the school in exchange for accepting him in the first place.  Wonder how many KG departments I’ll have to train before we can find one that sticks. :s

Alhamdulillah, very very busy.  Hiring a personal assistant this week, InshaAllah. As well as TEN more therapists.  Alhamdulillah.  Alhamdulillah.  AllahuAkbar.


September 30th, 2011  



I *heart* Islam

AutismUAE 2 Comments »

One of the most difficult things for me, in running AutismUAE, is trying to escape from being thanked or praised by the parents of children we help via our therapists.  I don’t mind being cried on, but once people start telling me how great/awesome/cosmic I am, I really start to squirm.  I feel guilty, because on one hand, everyone loves hearing how much they’re appreciated, but when you’re making your intention for the sake of Allah, and seeking your reward with Him and Him alone, then how do you reconcile when peoples’ praise makes you feel warm and fuzzy on the inside?

Islam has the answer!  Hence, the title of this post, and the link to this video, which I’ve actually linked before.  This link goes to the exact moment when Yasiq Qadhi talks about the same challenge that I face on a near daily basis- praise.  A man went to the Prophet Muhammad, peace and blessings of Allah be upon him, and shared his concern that sometimes, when he did something for the sake of Allah, people would later praise him.  The Prophet’s response must have felt as liberating to him as it does to me- the Prophet- salAahu alaihi wasallim- said that these praises are the heralds, the forerunners, the preliminary blessings for believers.  They are an advance of the good that is coming in the next life.

When I first heard this, I had to sigh with relief.  Alhamdulillah.  Up until hearing that hadith, I was beating myself up for being thanked, and while that doesn’t mean I can start my own We *heart* Abez club, that means that the happiness felt in my heart when a father tells me that his whole family makes dua for me every day is not a guilty pleasure anymore.  It’s good tidings of good things to come, InshaAllah.  Provided, of course, that I keep my intentions sincere and my actions halal.

InshaAllah.  :)

Alhamdulillah :)

AllahuAkbar :)


September 20th, 2011  



Hooray for Ambiguity

Uncategorized 0 Comment »

Is it possible to be both over and underwhelmed simultaneously? Because I think I am.  Work is overwhelming.  Life is underwhelming.  The daily grind is… grinding.  The kids are beautiful.  Life is busy.  Feed the baby.  Lather, rinse, repeat.

I’m having the thirty-one year itch.  I perform meaningful roles out of duty and habit.  I’m not jealous of anyone else’s life, I’m just not sure what to make of mine at the moment.  I live from the fulfillment of one person’s needs to next, never succeeding in the impossible quest to fulfill them all, constantly being reminded of the 20% I fail and never being credited for the 80% where I don’t.

I want to simplify, downsize, and prune it all back to the essentials.  I want to throw away everything in my storage room.  I want to throw out the clothes in my closet that are twenty pounds too small and stop feeling guilty for not being the same size I was before three kids.  I want to launch the pretty shoes I bought that hurt my feet over the boundary wall of the house, because it’s not like keeping them around will remove some of the guilt I feel for not being a better kept wife for my husband.

I’m not sure if I live in my pajamas or sleep in my clothes anymore.

I only have two hairstyles, up or asleep.

I’m too tired to socialize and too busy to want to.

I heard once that the best way to tell if someone is depressed is to spend an hour talking to them, and if, after that hour, you feel depressed, then they’re depressed.

I doubt if this post is making anyone happy.  Least of all myself, and now I’m annoyed at myself for being annoyed with things that perhaps should not be found annoying.  I need to scream into a cave, but my cave is full of people and the baby is sleeping and I don’t want to disturb anyone.

I’m not a good mother, a good wife, or a good director.  My house is disorganized, my children are bored, and my business is sloppy.  I’m a barely passable Muslim, and that is probably what’s bugging me the most.  When my Iman is high (my faith, not my three year old) I feel alive, I feel free, I feel empowered, I feel humbled, I feel real.  When it’s low, I feel worthless, useless, and failed.  My heart withers and verges on death until I pour the life-giving water of zhikr on it- and it comes back to life briefly but then I get busy and forget to water it again, and the cycle of chronic spiritual deprivation versus occasional resuscitation continues, but it continues unevenly.  I had an African Violet once.  A friend left it for me when she moved away from the UAE.  I was only supposed to water it with one teaspoon every two weeks.  I would forget for six weeks and then inundate it out of guilt.  Naturally, it died.  Naturally, I feel guilty.

Am I complaining? No, there are two reasons why I’m not complaining.  1.) I have no reason to complain. Allah has blessed me with more mercies and gifts than I could ever count, let alone thank Him for, even in an eternity.

2.) If I say I’m tired then they say I don’t have enough energy.  If I say I’m overwhelmed they say I’m in over my head.  If I say I’m stressed they say it’s my own fault.  If I say I feel anxious then they say I’m always panicking.  The problem with sharing your feelings is that sometimes they’re held against you.  Complaining is shooting myself in the foot, because then people think I am an incompetent idiot versus an overwhelmed idiot.  So I’m not complaining.

So there.

Blah.

 


September 15th, 2011  



Fuzzy Fiqh

HusbandFiles 6 Comments »

HF: Getting married is half your deen, right?

Me: Yeah.

HF: So getting two wives must complete it entirely then, hunh?

*rimshot*


September 15th, 2011  



Anonymity, shmanonimity?

Uncategorized 5 Comments »

Ok, I don’t really want to drive people away.  I guess I just want to lose the mental barriers that have gone up since my blog has become a public place, and is therefore not always the best way of sharing private thoughts.

Hmm, I could be deluding myself here, assuming that anywhere on the internet is a private place.  But humor me for the sake of argument.

Also, the L key on my computer might have banana milkshake in it.  Thank you Khalid.  It took me five attempts to spell your name because of the sticky L.

What am I trying to say here…I used to freely complain on my blog with the desired outcome of catharsis.  Now I’m afraid of offending people if I do.  I used to talk through my own weaknesses on my blog, now I’m afraid of mixing my human frailties with my public responsibilities.  I’m a dag-nabbit director, dag-nabbit.  I’m supposed to be on the ball, in the know, up the eyeballs in managerial competence or something.  I shouldn’t be complaining about the banana milkshake in the L key and how lately Musfira has been so nocturnal that my daily waking time is noon and I seldom, if ever, leave the house during daylight hours.  I shouldn’t complain about how my Ramadan felt like an utter waste because I got a kidney infection on day five and missed fasting for the next 25 days.  I shouldn’t talk about the overwhelming sadness I felt when Eid was announced because another Ramadan had ended and I was no better off than I was before and not at all looking forward to reintroducing waswassa to the darkness of my own thoughts.  When the sun set for the last Iftar I actually cried.

I’ve been reluctant to post for a while now, not fearing public disapproval, but rather of opening myself up to too many people who actually know me as a person.  I’m not sure what it’s called when you have an easier time sharing your deepest, darkest thoughts with a stranger on an airplane than your own family or long-time friends, but I have that.  I’ll open my inner recesses of my mind to strangers (and sell tickets to the event on a decorated marquis!) but keep it tightly locked to the people around me.   But now a certain element of mixing has occurred, and I don’t know whether I should tell the strangers on my blog that I feel useless, overwhelmed and frustrated, or whether I should tell the friends and family on my blog that I’m a little busy but perfectly fine, thank you.

And thanks to the magic of RSS feeds (thanks for the reminders, guys) my ingenious plan of not updating for a long ole time is not likely to work.  Which is such a pity, because I spent all of five minutes devising it, and now I want those five minutes back.

Meh.

I have no choice but to be myself, because I don’t know how to be anyone else.  I just don’t know how much of myself I can be here anymore.  Let’s see.


September 10th, 2011  



Wondering

Uncategorized 7 Comments »

If I leave this blog un-updated long enough, will people stop coming, and if people stop coming, will I get my anonymity back?  Just wondering.


September 8th, 2011  



From Darkness to Light

Islam 0 Comment »

There are so many things about this talk that I like that I’m not even sure where to begin.  SubhanAllah.


August 29th, 2011  



Peace, until the rising of the dawn…

Islam 2 Comments »

I thought I would post a quick dua request here.  It is an odd night, and the 27th too.  So more people making dua is good, right?  So what do I ask for?  What if I miss something?  How can I make a quick request that covers every possible situation, need, shortcoming, or deficiency that exists in the world and in every one of its people, living, dead, and yet to come?

اللّهُـمَّ أَنْـتَ السَّلامُ ، وَمِـنْكَ السَّلام ، تَبارَكْتَ يا ذا الجَـلالِ وَالإِكْـرام .

‘O Allah, You are As-Salam and from You is all peace, blessed are You, O Possessor of majesty and honour.’

Allah is He, than Whom there is no other god;- the Sovereign, the Holy One, the Source of Peace (and Perfection), the Guardian of Faith, the Preserver of Safety, the Exalted in Might, the Irresistible, the Supreme: Glory to Allah! (High is He) above the partners they attribute to Him.

Nothing in the world is as important as peace- salam, from As-Salaam, The Source of Perfect Peace.  To be ok with everything, and to have everything be ok.

Ya Salaam, please give us salaam.

Ameen


August 27th, 2011  



Life after death before death

Islam, Poetry 3 Comments »

Darkness lies around him
and watches with dark eyes
whispering suggestions
suggesting lovely lies
the smoothest path is downward
the uphill path is rough
(faith is but a tiny light
but faith is light enough)
a human walks in darkness
he says his eyes are bright
he cannot see his blindness
and his eyes are wide with fright
he says his heart will lead him
but his heart is dark inside
a light once sputtered there
but even that has died.

O you who have believed, respond to Allah and to the Messenger when he calls you to that which gives you life. And know that Allah intervenes between a man and his heart and that to Him you will be gathered.

The Qur’an, Surah Al Anfal, line 24


August 22nd, 2011  



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